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Saturday, 16 April 2016

Shoes please

Hi,

Foggy is currently on his way to Brussels for some more (non-UK) Europe sporty fun before he jets off to the other side of the world to make Australasia the 4th continent to be Foggy'd!

I am making the most of the peace and quiet (he may be tiny but he likes to be centre of attention!) to tell you all about a global initiative that is taking place on 25th May 2016. ME Action are organising the event and these extracts from the website explain it better than I could:

'#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease.  At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of doctors are missing out on proper training to diagnose and help patients manage this illness. ....... #MEAction is sponsoring a community-organized protest at the Department of Health and Human Services (HHS) in Washington, DC. ME patients, advocates, caregivers, and allies will join together to protest of the lack of government funding for research, clinical trials and medical/public education, leaving ME patients without relief.  Due to the nature of ME, we anticipate that many will not be able to personally attend and that is why we would like to invite patients to attend the protest virtually'  (Taken from http://millionsmissing.meaction.net/)

I encourage all ME/CFS sufferers to participate in the shoes installation. Let's make this event as successful and unmissable as we can. Click the link above for details on how to participate. It is a GLOBAL event and we should all work together on this.

Personally, I am sending an old pair of beloved dancing shoes. ME is making me miss my dancing nights out. What are you missing?

Sally xx




1 comment:

  1. This is very exciting! Both Foggy's journeys and the protest. I love the fact that it's a global initiative so that we can all take part. The tides are changing...

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