I've had a lot of my symptoms for a few years, but they really started to show in 2015.
A few months back, I was desperate to just be completely cured. Whereas now, I try to just deal with my symptoms on a day-to-day basis. Having spoken to other members on a course I took ,that taught us how to deal with the illness and how to 'pace' , I know that not everyone has the same symptoms.
I think support is key to handling M.E. I have been lucky to have the support from my family , partner and friends, but have found that I have to 'prove' to medical professionals that I am unwell. I have also had to go through various processes just to prove I cannot work full time and am entitled to some financial support. I am still in the process of 'proving' I am unwell, but do just about get by on my 10-15 hours paid work a week.
It took a lot of courage for me to start using the crutch because many can't see why I need to use it if I am ''just feeling tired''. I don't tend to use it much, but do find that a visual sign of someone being unwell really helps people to be more understanding.
- To be more confident in myself, and not be embarrassed or ashamed of being unwell and telling others about it.
- To increase my work hours gradually so that I am able to support myself in the future, and so that I am able to do the social and active things that I enjoy.